“If she does, she will never be the same as she will likely lose a lot of movement, if not all. If we do nothing she dies a horribly slow death.
We have decided to attempt the surgery to hopefully get a miracle. Cheyenne has always been my hero as I have battled cancer for the last 6 years and she has overcome so much that doctors said she would never overcome.
I believe if anyone is strong enough to pull through this surgery it is my baby girl. We have two weeks before the surgery so we are making sure that she has the best time of her life and we make many more memories together.
Thanksgiving was amazing with all the kids, even Chey, making parts of the meal. Chey’s mashed potatoes were the best ever!! Friday our elf on the shelf returned from the north pole with a present from Santa for Cheyenne that she really wanted 🙂
Chey was really concerned that she won’t be home in time for Christmas so we had Christmas morning for her today. She hasn’t stopped smiling for days 🙂
I will be bringing Cheyenne into school Monday and make sure to talk with everyone. She will not be able to attend the whole day as she has blood work that has to be done at Cedars-Sinai.
I wanted to make sure she could have a normal routine of getting up, ready for school and to see some of her favorite people at school before she had to go to the hospital.
I am attaching a link to a go fund me page for Cheyenne. In no way feel like you need to donate but I am sharing as this will be the place my wife and I keep everyone updated as a group so we don’t have to send out individual updates
Chey has touched the lives of so many around the world that this makes it easiest.
Keep her in your thoughts as she needs all the prayers and positive energy she can get for this surgery.”
– Paul HughesThe family set up a GoFundMe account to raise money to offset the costs of Cheyenne Hughes’ medical costs. The is a developing story and will be updated with new information as it is received and vetted for accuracy.