Sebastian Velona, 14, holds up a banner for the nonprofit Project Sebastian that is working to educate the public about Batten Disease and to help find a cure. Courtesy Photo
Local nonprofit Project Sebastian aims to eradicate Battens Disease
Fourteen-year-old Sebastian Velona is a positive high school student who loves to play the drums and practice karate. He faces adversity head-on and tries to stay strong as fights his…
