Sebastian Velona
Read more about the article Senate OKs resolution on Batten Disease Awareness Weekend
Sebastian Velona, 14, holds up a banner for the nonprofit Project Sebastian that is working to educate the public about Batten Disease and to help find a cure. Courtesy Photo

Senate OKs resolution on Batten Disease Awareness Weekend

The California Senate approved a Senate Joint Resolution on Tuesday that declares the first weekend in June Batten Disease Awareness Weekend, an effort led by State Sen.Scott Wilk, R-Antelope Valley.…

Continue ReadingSenate OKs resolution on Batten Disease Awareness Weekend
Read more about the article Local nonprofit Project Sebastian aims to eradicate Battens Disease
Sebastian Velona, 14, holds up a banner for the nonprofit Project Sebastian that is working to educate the public about Batten Disease and to help find a cure. Courtesy Photo

Local nonprofit Project Sebastian aims to eradicate Battens Disease

Fourteen-year-old Sebastian Velona is a positive high school student who loves to play the drums and practice karate.  He faces adversity head-on and tries to stay strong as fights his…

Continue ReadingLocal nonprofit Project Sebastian aims to eradicate Battens Disease
Read more about the article The healing power of hugs: Santa Clarita family begins foundation to treat son’s fatal disorder
Teri Hughes Fox, Michael Fox, Sebastian Velona (13) and Gage Velona (11). Courtesy Photo

The healing power of hugs: Santa Clarita family begins foundation to treat son’s fatal disorder

Thirteen year old Sebastian, or Sebi, Velona believes in the power of hugs.  The eighth grader at Rio Norte Junior High School believes that a big, strong hug can heal…

Continue ReadingThe healing power of hugs: Santa Clarita family begins foundation to treat son’s fatal disorder